The tragic death of a six-month-old baby girl from Nagpur has left her parents and city doctors in despair. Saanvi Sathwane from Nagpur was diagnosed with a rare disease called ‘Type 1 SMA’ (Spinal Muscular Atrophy) when she was barely a month old. Born in January this year, Saanvi lost her battle with life on Wednesday early morning at city’s super specialty hospital – Icon Hospital.
Saanvi’s father Devidas had told Nation Next that before she breathed her last yesterday, her heart stopped beating multiple times.
Devidas told us, “Saanvi was on oxygen support since a while. We’d rushed her by a train ambulance from Nagpur to Delhi’s AIIMS hospital few days back, where we weren’t even provided a room saying that the hospital didn’t have any vacant bed for my daughter. We had to keep her waiting in the ambulance outside AIIMS. Dejected, I got her admitted in Safdarjung Hospital in Delhi.”
Devidas further said, “We tried to get Saanvi into an ICU there but failed. So we had to keep her in the general ward there. That’s when she suffered a cardiac arrest. To my horror, there wasn’t a single ventilator available. My friend who works in the same hospital came across an old ventilator lying down. We used the same for my daughter. That’s when I decided I’d go back to Nagpur because if she ever she’s kept on a ventilator, her survival chances wouldn’t even be bleak to say the least. ”
Devidas said that there wasn’t any cure or medicine available for his daughter in India. The only drugs that could save his daughter’s life were available in abroad, which cost around Rs 15 crore.
Devidas had even requested various ministers on Twitter to help his daughter by arranging for the life saving drugs. However, he didn’t get any response.
देश की जनता ने जाति और धर्म की आड़ में देश को धोखा देने वालों को आज पूरी तरह से नकार दिया है।
इस ऐतिहासिक क्रांति को लाने वाले आदरणीय प्रधानमंत्री श्री @narendramodi जी एवं विजय के रणनीतिकार आदरणीय राष्ट्रीय अध्यक्ष श्री @AmitShah जी को हृदय से बधाई एवं शुभकामनाएं। #VijayiBharat pic.twitter.com/ESfoUEanbU
— Jagat Prakash Nadda (@JPNadda) May 23, 2019
@narendramodi @PMOIndia @MoHFW_INDIA @drharshvardhan @NITIAayog @RajivKumar1 @ibhushan 6 mnth SMA type 1 baby frm Nagpur brght 2 AIIMS bt didn’t get bed. Admtd in Safdarjung gward, no bed in PICU n no ventilator in gward. Baby suffered cardiac arrest. It’s India’s health care? pic.twitter.com/rLSpNnG10P
— Cure SMA Foundation of India 🇮🇳 (@curesmaindia) June 25, 2019